Timeline
From young to old: health data in myInsel
When patients receive treatment from Insel Gruppe, they can subsequently view all their personal treatment information easily and conveniently in the myInsel patient portal. But how are access rights for children and young people regulated: who has access to their patient data, when is access permitted and in what form?
In principle, legal guardians have full access to their child’s health data up to the age of 12. However, data sovereignty is transferred to the young person from their 12th birthday.
Exceptions for those aged between 12 and 16
Access to the health data of young people is automatically withdrawn from parents and legal guardians on the young person’s 12th birthday (i.e. entering their 13th year of life). To continue using myInsel, young people aged 12 and over need their own myInsel account.
Note: for patient protection reasons, young people between the ages of 12 and 16 are not authorised to grant parents or legal guardians access to their health information in myInsel.
Up to the age of 12, parents and legal guardians have full access to their child’s health data via myInsel. To do this, they need their own myInsel account and the corresponding access authorisation. 
Children under the age of 12 are not permitted to open their own myInsel account.
Access to the health data of young people in myInsel is automatically withdrawn from parents and legal guardians once the young person reaches their 12th birthday. Young people can create their own myInsel account with full access to their own patient records.
If requested by the young person, parents and legal guardians can continue to be involved in all treatment and will be prioritised when it comes to receiving organisational information from Insel Gruppe. 
The responsibilities of young people with regard to myInsel include:
- Regularly checking health data and appointments.
- Viewing reports and results following doctor’s appointments. 
- Keeping contact details up to date.
From the age of 16, young people automatically receive access to the full version of myInsel including all available functions (such as the approval hub).
This gives young people the freedom to decide whether their parents or other people close to them should have access to their health data after their 16th birthday. If they decide to grant access, the guide for the myInsel sharing hub can be found here.
Children cannot apply for their own myInsel account until they turn 12. However, parents and guardians can access their child's health data via their own myInsel account, provided they apply for the relevant access permissions:
- Apply for your own myInsel account here.
- If you have any questions, there are instructions for registration and activation (explanatory video – only available in German).
To access your child's patient file, you must have an active personal myInsel account. After activating your account, you can fill out the proxy form* in the menu to request access permissions to your child's patient file.
- Talk to your child about the upcoming access rights change.
- ownload any important documents and save them (e.g. vaccination certificate, important findings).
- Create an overview of ongoing treatments and medications for your child.
- Write down important contact details of doctors and health care providers for your child.
One month before your child’s 12th birthday, you will receive a message from us in your myInsel account: this will remind you that access to your child’s medical records will be withdrawn from you from your child’s 12th birthday. 
- Help your child register for their own myInsel account.
- Respect your child’s privacy regarding their health data.
- Communicate with them regularly about important health issues.
- Encourage your child to use myInsel responsibly.
You will continue to act as a contact for Insel Gruppe with regard to organisational information and will be involved in ongoing treatment. Only the access to patient records via myInsel will no longer be possible.
- Talk to your child about the option of granting you access again.
- Respect your child’s decision.
- If desired: let your child add you as an authorised person using the myInsel sharing hub function.
*Proxy form: Request access permissions
- Register and activate your own myInsel account.
- Open the «Ask a question» section in the menu of your myInsel account.
- Select the «Proxy form.»
- Fill out the form carefully.
- Upload a photo of your child's official ID.
- Once your application has been approved, your child's patient file will be linked to your existing myInsel account.
- You will now have access to your own file (if available) and your child's file in the same myInsel account.
If you have any questions, please contact myInsel support.
Note regarding persons with permanent incapacity of judgement
Parents, legal guardians and legal representatives still have access to the health data of children or young people who are permanently incapable of judgement even after the young person’s 12th birthday. 
Once the young person turns 12, please check whether your access is still working and, if necessary, contact our support team or your treatment team. Many thanks. 
Contact
If you have any questions or are unclear about anything, please do not hesitate to contact us.